BQ Tonic Seizure 2014 

These tonic seizures used to happen daily. Along with epileptic spasms. We’d start timing as soon as we’d see the telltale head twist and eyes turn. Then, in 2015, he started the ketogenic diet. I was so skeptical of that diet. How could fat treat the brain? Well, we’ll take it. 


First Post

Here goes. How many blogs have started with those two words? Putting down words for all of the world to see? I don’t like exposure but I strangely want some parts of our lives to be visible and transparent for others. To be seen and heard and felt.

The main purpose of this blog is to help keep caregivers up to date on how to care for Mr. B, as we call him.

How things have changed. Other moms told me that it goes quickly. I didn’t believe them. I should have.